Quick and Random

• Gloria called today and urodynamics is scheduled for 8:00 am  and renal ultrasound at 7:45 on Tuesday.  That will be an early early morning and a very very long day.  Myelo clinic is in the afternoon.

I am curious if the bladder will show us anything definitive.  Sounds like it's not a deal maker or breaker for Boaz.  Maybe this mama just wants a little reassurance we're making the right call.

• I plan on calling around AGAIN to find the right PT situation for Owen.  I'd like to have some private PT in place before surgery if possible so they know him and see him BEFORE so we can make good progress AFTER with their extra help.  Really wishing I had not procrastinated on this so long. ah well.

• Owen's school speech therapist called and wants to switch him to an Articulation Group instead of the Language Group he's been in.  I'm excited about this.

We also talked about having a re-eval for speech placement next year.  She thinks this would be a good idea, and may be able to do some of it before our case conference meeting in 2 weeks. yay.

• I registered Owen for preschool yesterday.  His education team agrees the best place for him will be at the community preschool Kate has been attending.  Full-time with typical peers doing typical things in a typical school like a typical kid.  So next year they'll send him there 4 days a week in the afternoons.  We'll deal with the stairs!  The program will be great for him.  AND... AND the staff at the preschool is willing to learn how to cath!!!  HUGE BLESSING!  I am so thankful they were so open to this!   Not the case everywhere.   I'll bring him to the Elementary in the morning 1 or 2 days a week for his therapies.  Super excited about this arrangement.

•  Started videoing him walking today for future reference.  Also made him walk up and down the stairs today holding my hand—with much protest.  Testing him a little to see where he's at.  Noticed his feet are turning under quite a bit and turning in as well.

• Seems his appetite is returning.

• He was so sweet with Evie this afternoon.  Giving her kisses.

• Said to me on the way home from speech therapy tonight:  "Where are we going? Are we going to our home to be wiff my bruvers and sisthers and my dad?"   So sweet.