Doing Well

We are doing well. LOVING being home!

Owen seems to be feeling pretty good.  He is able to walk with assistance.  Keeps trying to walk by himself but his balance lasts for about 2 seconds.  I have to keep a close eye on him. In his mind he feels like he should be able to just take off, but a fall would really hurt.

Took him to physical therapy at Turnstone today.  He did good.  Crabby, whiny attitude for a majority of it, but he did good.   I guess I would be whiny too if I were him, but it is starting to get old for his mama who knows he knows better.

Yesterday he mostly layed around and played on the floor.  I had him sitting at the table for a while coloring.  He also took a much needed long nap!  I put the rail on his bed to keep him from trying to get down on his own.  Those legs just are a little shaky yet.

Today he has been moving independently much better.  Getting up and down from a sitting position to laying on the floor al by himself.  Even crawling a bit this afternoon!  Yesterday we were still helping him transition whenever he wanted to change positions.

He really is doing amazing.


He has really been fighting us on taking his medicines.  So this afternoon, he seemed to be doing fine and I told him we'd skip a dose and see how he did.  So far so good.

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He got a sweet card today from his teacher & classmates at school, Nurse Jill, and the office staff (who adore him.)  They sent it home with Liam.  It was really sweet.  I tried just now to upload it and caringbridge is still having issues.  grrr.  Owen was excited to show me the pictures of all his friends.  They all signed their names.  It was really thoughtful and made his day.

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Grandma Potter got to come up today.  Watched the other kids while we went to therapy.  It was nice to see her. She and Neil just got back from Colorado last night.  Grandpa will come up tomorrow maybe.  It was hard for them to be away during this time.

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Things we're praying for:• for Owen to gain balance and strength to return to his legs through practice and patience.
• patience and wisdom for us with his behavior
• and also for how best to manage his pain.